Boy inspires scrapbooking fundraiser for MDA

September 23, 2007|By ALICIA NOTARIANNI

FUNKSTOWN - J.C. Lehman, 6, of Hagerstown, flipped through family photos with his mother, Donna. There was one of J.C. at his first birthday party, one of his first visit to Greenbrier State Park, and another of J.C. at his cousin's birthday party at Chuck E. Cheese.

But the one that struck him was the one where he was eating broccoli and cauliflower.

"I ATE that?" he said.

The mother and son attended a Crop to Cure Muscular Dystrophy Saturday at Funkstown Volunteer Fire Co. from 9 a.m. to 6 p.m.

Two years ago, J.C. was diagnosed with muscular dystrophy. His aunt, Sarah Ward, 37, of Harpers Ferry, W.Va., organized the crop - a scrapbooking party - to raise money for the Muscular Dystrophy Association.

"I was trying to think of a way to make some money for MDA. We need research money to find a cure," Ward said.


Ward does some scrapbooking and had heard of organizations holding crops as fundraisers. She decided to plan one and sell tickets for $40. The price included table space, lunch, door prizes and a goody bag.

"People like to scrapbook, but they don't always have the time for it. This is a time for people to get together and share ideas, do what we like to do," Ward said.

Ward contacted scrapbooking supply vendors throughout the United States soliciting donations for merchandise to sell, raffle and use as door prizes at the event. Between ticket and merchandise sales, Ward said she hoped to raise $1,500 for the Muscular Dystrophy Association.

J.C. said his aunt was raising money to help him

"I have muscular dystrophy. It's a disease," he said. "It makes my legs tired."

Planning the future

Donna Lehman said J.C. has Duchenne muscular dystrophy, which typically weakens the legs first, then the arms before eventually striking the heart. She said it primarily affects boys, and that most who have it do not live beyond age 25.

"But Johns Hopkins is doing some exciting medical trials. We live in an exciting and hopeful time," Donna Lehman said.

Donna and her husband, James Lehman, encourage their son to plan for his future.

"I like dinosaurs. I wanna be someone that studies dinosaurs. A paleontologist. My mom can't even say that word," James said with a giggle.

Vera Viehmann of Monrovia, Md., attended the crop.

"I scrapbook, but not as much as I'd like. So I thought this would be a good chance to do that. I knew of J.C. and I wanted to be involved," Viehmann said.

Candee Chadwick, 34, of Harpers Ferry, W.Va., helped Ward organize the event. About 30 people attended.

"I think we have the perfect number of people. Everyone has a nice, large space and seems to be having a great time," Chadwick said. "Hopefully we can make this an annual event to support J.C. and all the other kids. It all goes to a great cause, that's for sure."

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